Coping with neuroblastoma
It is extremely distressing to find out that your child has cancer. It can raise many different emotions. It is very normal to feel angry, sad, upset and shocked. It is such a lot to take in. You are likely to worry about whether they will get the right treatment, what will happen, and how you will all cope.
If you have other children most parents and grandparents worry about them as well. Practical help and support is something people nearly always need. For example, shopping or help with looking after other children in the family.
It is essential that parents and other close family also have support. Talking to friends and other members of the family can help you deal with your feelings.
We have more information about what to expect when your child is diagnosed. It also explains and signposts to information about:
-
working while your child is sick
-
financial support
-
schooling
-
emotional support
-
ways to help tell your child they have cancer
Organisations that can help
Neuroblastoma UK is run by the parents and grandparents of children with neuroblastoma. They have a befriending scheme for affected families.
The Children and Young People's Cancer Association (CCLG) work to coordinate national and international clinical trials. They were previously called the Children's Cancer and Leukaemia Group. They also provide information about cancer for children, young people and their families.
Phone: 0333 050 7654
Email: info@cclg.org.uk
The Future Fertility Programme Oxford is run by a team of doctors, researchers and tissue bank specialists. They are part of Oxford University Hospitals (OUH).
They aim to help children and young people at risk of infertility due to illness or treatment.
Solving Kids' Cancer UK is a charity that provides information and support to families of children affected by neuroblastoma. They're also involved in funding and initiating research to improve treatment for neuroblastoma.
Phone: 0207 284 0800
Family support team:
Email: support@solvingkidscancer.org.uk
Other enquires:
Email: info@solvingkidscancer.org.uk
Other sources of help
Some organisations can put you in touch with a cancer support group. We have information about books, leaflets and other resources about cancer treatment.
