A study of the symptoms of myeloproliferative neoplasms (MEASURE)

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Blood cancers
Myelofibrosis
Polycythaemia
Thrombocythaemia

Status:

Closed

Phase:

Other

This study is looking at a new questionnaire to collect information about the symptoms of myeloproliferative neoplasms. Myeloproliferative neoplasms are a group of disorders of the bone marrow Open a glossary item that cause an increase in the number of blood cells.

People with myeloproliferative neoplasms can have a range of symptoms that can affect different parts of their body. The study team have designed a new questionnaire to collect information about the symptoms people have.

The aim of this study is to find out how well this questionnaire works.

Who can enter

You may be able to join this study if you are starting a new standard treatment Open a glossary item for

Trial design

The researchers need 800 people to join the study.

You fill in a diary over 7 days around the time you start your new treatment. You must answer the questions on at least 1 day before starting your new treatment. It should take no more than 15 minutes each day. You can complete the diary at home and then hand it to your doctor at the next appointment. Or you can return the diary by post afterwards.

Between 3 months and 6 months later you will complete the diary again.

The questions will ask about any symptoms you have had.

Hospital visits

There are no extra visits to the hospital if you take part.

Side effects

There are no side effects if you take part.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Dr  Deepti Radia

Supported by

Guy's and St Thomas' NHS Foundation Trust
MPD Voice
NIHR Clinical Research Network: Cancer
 

If you have questions about the trial please contact our cancer information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

13225

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Last reviewed:

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