Resources and support for gestational trophoblastic disease
There are lots of organisations, support groups and helpful books to help you cope with gestational trophoblastic disease (GTD) and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
GTD support organisations
There are two hospitals in the UK where women are treated for GTD. These hospitals offer specialist support and information on their websites.
The Hydatidiform Mole and Choriocarcinoma UK Information and Support Service
This website is run by the specialist centre at Charing Cross Hospital in London. The website has information and useful contacts.
Weston Park Trophoblastic Disease Centre
This website is run by the centre at Weston Park Hospital in Sheffield. It gives details about their drop in clinic, patient information and information for doctors and nurses.
The Miscarriage Association
The Miscarriage Association organisation provides information and support about pregnancy loss.
Helpline: 01924 200 799 (Mon-Fri 9am-4pm)
Email: info@miscarriageassociation.org.uk
Maggie's Centres
Maggie’s is a national cancer charity. They work with the specialist GTD centres to offer support groups for people during and after treatment for GTD.
Phone: 0300 123 1801
Email: enquiries@maggies.org
Tommy's support for women with molar pregnancy
Tommy's is a research charity in the UK looking into miscarriage and pregnancy problems.
They have a helpline staffed by midwives and the website includes women's stories about molar pregnancy.
General support and information organisations
College of Sexual and Relationship Therapists
College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.
Telephone: 020 8106 9635
Email: info@cosrt.org.uk
Royal College of Obstetricians and Gynaecologists (RCOG)
The RCOG provide information for the public about women’s health and wellbeing. This includes leaflets, podcasts as well as pointing to other sources of help.
Teenage Cancer Trust
Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.
Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.
Teenage Cancer Trust
The Place
175 High Holborn
London
WC1V 7AA
Phone: 020 7612 0370 Monday to Friday 9am to 5pm
Email: hello@teenagecancertrust.org
Macmillan Cancer Support
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
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